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No Time for Losers–We are the Champions of the World! — 68 Comments

  1. We have a Downs grandson so I know EXACTLY each scenario you talked about in this post. I would not change a thing about Dakota, to me he is perfect just as he is.

    • Dakota, what a wonderful name! Well, then, CTV, you know that of which I speak! Very, very special blessings, aren’t they? Thanks for sharing that little tidbit with us, too!

    • Thanks for the encouraging words, Crystal. It just takes my paying closer attention to his cues about what he wants and needs. Some times I’m so busy with work, etc. that I’ma little slow on the uptake!!!

    • Appreciate the kind words, Laura. some people feel sorry for a family when a child that is less than perfect enters it, but I think it is we who are the fortunate ones for being allowed to experience life with someone who has way more than we do in that one extra chromosome.

  2. Ye can tell Miah he looks very “GQ/James Bond” in that white suit – that’s a great photo of him! Glad to hear he will be pursuing something he enjoys…and look forward to “Chef Miah”.

    • I will certainly tell him. And he informed me that he is going to be a CHEF soon!!! Dotter dreams of their having their own restaurant. I will dream that along with them!

  3. Congratulations to Miah and to his family for giving him the love to grow him into a “man”. I loved your story. I joined your blog when I was looking for information about Vibrio bacterial infection. I’ve enjoyed following your blogg.

    • Yes, I think I recall our exchanging vibrio war stories! Thanks for following and coming back to read and taking the time to leave comments. that’s what makes this writing this blog worthwhile, Sharon!

    • Well, as LilSis, you know I only hit the high points!!! Thank you for being here when I needed you, and your plate was already full with a toddler with her own special needs.

  4. This is a beautiful story. Miah is blessed to have you as his mom. You are blessed to have Miah as your son. I am blessed to call you my friend.

    • You’re too kind, Nancy. I hesitate to put in writing some of the thoughts that were expressed during some of the decision making. I in no way wanted to insult anyone who has chosen classroom teaching as their profession. I admire you, and others like you, more than you know; and God knows I could NEVER do what you do!!!! Hat’s off to you, Nancy! I’ll be sure and look you up next time I’m up north.

  5. Thoroughly enjoyed reading about Miah. I remember when he was a young child growing up with us, though I was older and closer friends with David. He’s a very special young man and I would love to be a taste-tester any time he’d like to have me. Congratulations to him on his wonderful achievements!

    • Megan! I thought I recognized your name! I’m still wondering how you ended up finding my blog, because I noticed when I looked you up last week that you are on blogspot. Very impressive, young lady!!! Thanks for chiming in and reminding me of who you are! I’ll visit your blog more often now that I’m sure it’s you!

  6. This is such a beautiful story. Thank you for sharing it, and photos of Miah and his activities. It is all so touching.

    • I’m sorry it’s so lengthy, but how do you capsule such a big life into 1200 words? There were some other life-changing things that occurred during his lifetime that really aren’t relevant to his graduation story, but I tried to pick the most important highlights! Thanks for continuing to visit here, read, and comment, Carolyn!

  7. Miah was a highlight of my day when he was at HJH. He always had a smile and still does when I see him at church with Rachel. He used to stay with me in my Algebra class and work on his math when Mr. Tim was out. Glad I had the privilege of seeing him everyday. Congrats!

    • Yes, Donna, you are one of those peripheral folks that matter as much as the rest, many of whom I’m still not sure of! Thanks for taking such good care of Miah when he was entrusted to your care!

  8. This is so wonderful. I also have a special needs son. He will graduate next yr. He’s been out of school for 1/2 the school yr due to 2 broken feet and countless surgeries. He misses his friends but I have promised next yr will be his yr to graduate and go to prom. He’s so excited, so loving,with the biggest smile and heart ever. He cant wait to get back into his special olympics too 🙂 Congrats again to Miah. We also gave my son a special name when he was born–Matthew, but we call him {{ mihan}}. Hope you and your family have a great and awesome summer.

    • Yes! Tell him to hang in there. Thank you for sharing about your wonderful son. I don’t know how they face their trials and smile like they do. We could all take a lesson from that, right? Best of luck to both of you and blessings beyond belief!!!

  9. Congratulations to your son and entire support team…have been caring for a kid brother with autism for a great many years and it’s inspiring to hear these success stories….as I’m an old hard boiled N.Y.er I will not admit to crying but suspect I had something in my eyes..

    On a different topic..do you have any older single sisters that can back up a boat trailer and tie a palomar knot?

    • Ha ha, you’re funny! Something in your eye, you old hard-boiled New Yorker? I have an older, single sister but she can’t back up a boat trailer, nor can she tie a palomar knot! But she can cook!

      • HMMM. she can cook you say..I could be persuaded to overlook her obvious flaws relating to boating and fishing but she’d have to demonstrate her talents on shrimp scampi,baked ziti,chicken cacciatore and a slice of home made N.Y. cheesecake..
        None of that crawfish stuff…
        Fedex overnight will work..
        Again..congratulations to your amazing son,you and everyone that encouraged his success..

  10. “Jeremiah is perfection in the imperfection.”

    I didn’t know….thank you for sharing your heart.

    I am amazed that it meant so much to you. I am thankful that I was able to encourage, to hold you steady, and to believe in your ability to teach Miah to read.

    Great job guiding a special young man!

  11. I believe God only gives special children to those parents that can and will love his children as He would. We also have special needs children in our family and can relate to all the trials and tribulations and joys and triumphs! With His love and guidance, we shall overcome ALL obstacles in our path!

    Kudos to Miah for sticking with his studies and working hard to achieve graduation! Graduation never happens for some kids who don’t even want it or just throw away their education due to other circumstances or mindsets or lack of parenting, etc. And kudos to you also Wendy and your husband for raising such an awesome son who will one day (with hard work and dedication – nothing new to Miah!) become a contributing member of our society/parish.

    Congratulations Miah! And also to you, Wendy, one very deserving proud Momma! 🙂

    • You make a good point about kids who throw away opportunities of high school graduation. Some days it was quite a struggle for Miah. I never knew when he might be having an off day, and refuse to go to school. The schools make no exceptions for these kids in regard to unexcused absentees, either. For a while, he had problems with chronic sinus trouble (due to the underdevelopment of the sinuses), although there was no need to take him to the doc for every incident. It was enough to keep him home, though, resulting in my getting a very threatening letter from the Truancy officer saying that he would be considered truant after so many unexcused absences. We were finally able to get a letter from the doctor stating the situation. That letter had to be renewed every year, too. Just to say, there’s no leeway with these kids. I guess if you want them treated like everybody else, then it will be that way straight across the board. I wish every parent could have one child like him. They are a lot of work in their formative years, and the tendency is to feel sorry for them and spoil them, but that doesn’t help them be the best they can be. There are heartbreaking moments like when he reminds me that he needs his driver’s license. He wants a car. He wants to go to college. But the rest of the time, he is so content, and I’ve said it many time: He is the EASIEST son I’ve had. Keeping him home to pattern the behavior of his siblings was the best thing I could have done for him. Thank God for the infinite wisdom given to us when we need it.

      • Very true! Spoiling and feeling sorry for your special child will give him/her no benefits for his/her life lessons. A driver’s license! Wow! Can I suggest bringing him to the DMV and get him an identification card with his photo on it. Even though it is not a driver’s license, it is something important for him to have when he will be out in the world – without you! A wallet for him to keep it in and a few bucks will make him feel more grown up and have him be responsible for keeping it with him at all times and keeping track of it. Then, one day, when he has graduated from his cooking lessons (college) and he wants to be a cook somewhere at a restaurant, he can ride the bus system to and from his new assisted living home and his work place!

        I know, I’m talking about things that are very far in the future and may not even be a possibility (right now), but I believe with your precise guidance, he will get there one day.

        Trek on my friend! And, don’t forget to stop and smell the roses along the way too! <3

        • Well, Dotter has been after me for over a year to take him to get his ID. I’m a procrastinator. I also fear he will think he’s getting a real license and just haven’t been ready to deal with the fall out from that. He has his wallet, AND his cash! We’ve been doing that for several years in conjunction with his “community based instruction”. He buys his toiletries, etc. during class trips. All good ideas, though! Thanks!

  12. Reading, not only knowing, Miah’s life story literally uplifted my heart. My chest actually lifted upwards. He is the sweetest guy! What a happy young man he is. He always makes me smile because usually he’s smiling. It’s going to be fun watching him progress through the culinary world. Go Miah!!

    A great big hug from me to you for putting all this down for us to share.

    • It did my own soul good to see an overview of how God has continually provided for this child. He really is such a joy, and he’s such an easy kid to please that he has often gotten overlooked. Well, it is his time to shine, and I hope to help him do just that!

  13. Congratulations Miah!….and to you, BayouWoman, as well. You have been an incredible mom to Miah and all of your children. Giving up just is not in your nature. Blessings to you all….

    • Well, with the five successful children you’ve raised, I think you must know a thing or two about God’s wisdom and rearing great kids! Glen brought me up to speed on each of them when I talked to him at the Floating Island Marsh project back in April. Thanks for the kind words–means a lot coming from you, Melinda.

  14. I read Miah’s story and it is so wonderful and a great inspiration for others who have family with special needs. I would be honored to dine at Miah and Dotter’s restaurant in the future! And, I have a feeling they will pull it off!!

    I agree with Darlene, God only allows specially chosen families to send his special children to and your family was one of them. You have given your all to making sure he gets what he needs to learn and fulfill his dreams. Wish every child had a parent like that. And his siblings have been right there beside him with encouragement from day one!

    Congratulations Miah!! Loved the video and the photo of you in your tuxedo! Spiffy!

    • Thanks so much for your kind words, Cammy. I haven’t always been the best mother, but I guarantee you, Dotter has taken up my slack with this kid, especially when she still lived with us. when she left for college, he missed her as much as I did! She still makes sure he goes neat places like Blue Man Group concert, musicals, plays, the movies, Disney World, and this summer they are going to Sea World in San Antonio, the Alamo, and Fiesta Texas! Now, isn’t that a great big sister?

      • Would Dotter like to add me as a big sister? I would love to go to some of those places. 🙂 She is one great lady too. But, she has you as an example.
        Hopefully, next year with the new knee, I’ll be able to do some riding and walking.

  15. Congratulations Jeremiah I know you have worked hard to get here. Now the fun begins learning to use what you have learned. Even though that white suit you wear looks good, I still think you look cool in your Saints jersey.

    Congratulations BW, it takes a really special person to guide an angel.

    • Well, I don’t believe it takes a village to raise a child, but I do think it takes a group of cool kids like mine to love and help raise a sibling like Miah. My kids are still close, and for that, I am very, very thankful. Staying home, teaching, training, and disciplining my “blessings” was my full-time job, which I took very seriously. As adults, the older three are beginning to see more of the inner person I am now, and not just the mother that taught, punished, loved, and spanked them. We never see our parents as real individuals until we reach adulthood, and this article really opened the eyes of my two adult sons to that fact. I’m glad I took a little side track with this post and shared a part of our lives with you.

  16. Wendy, what an amazing story! Congratulations Jeremiah! All the Best to you in the future!

  17. CONGRATULATIONS TO MIAH AND FAMILY!!!!!!!!!
    That was a great post and yes I cried. I grew up with a special needs person and their milestones should always be praised. This past week-end I visited with a family with a very handicapped son that I babysit with almost 45 years ago and he remembered me. Man that made me feel Wonderful. Mike is brain damaged and also in a wheel chair but the light in his eyes brought tears to mine. Congrats again!

    • Oh, how special is that, Judy? sometimes I think special people are the fortunate ones, and we are the unfortunate saps. It’s all in perspective, I guess. Thanks for sharing this!

  18. What a tear jerker! Thanks for sharing your story. It just proves what a determined woman can do and how the Lord provides. May HE continue to bless you and Miah.

    • Well, Linda, it really wasn’t just me. Dotter played a big part in his development and his love for life. She is such a joy in her own right, and worried about him when she left for college, just like a mother hen. Sometimes, I truly felt like she had entrusted her child to me!! And to be quite honest, he has always preferred her over me, and that’s okay, because there may be a day when he is with her full time. I couldn’t have asked for a better sibling relationship!!!

  19. I remember reading a post you did about 3 or 4 years ago recapping a “Bayou” field trip with his classmates on your pontoon boat. I was moved then…this post tops the other. Linda’s first sentence says it all. Congrats all around. I’ll be at the grand opening of the sibling eatery.

    • OH OH OH!!! Maybe you just named the place: THE SIBLING EATERY!!!!! I LOVE IT!!!! (I don’t often write in all caps, so you know I’m excited right now!) Yes, I took his junior high class on a wetland tour, and he has asked me several times to take his class again, but transportation from the school to here is some kind of liability issue. They won’t bring them on a huge school bus because it’s only six kids. Oh well . . . . thanks for the congrats!

  20. Congratulations Miah! I first met Miah when you came to my classroom to read your book to my second grade students. I can’t believe that he’s all grown up! I’m looking forward to hearing about his cooking adventures. I know he’ll love it.

  21. What a touching, marvelous, smile-producing story. On the other hand, as I read, I couldn’t help think of all you weren’t including here. Anyone who raises such a special child, who has to learn to cope with unexpected disabilities, takes on the care of an aging parent and so on knows how much is left unsaid about the frustrations, anxieties, drudgery, and exhaustion that’s also part of the story.

    The wonder is that we’re able to move through it, and to taste the joys of such events as Miah’s graduation. I have no doubt that there will be plenty of challenges ahead, but there are going to be new successes and new delights as well.

    I’m sending along a whole bunch of hugs – for Miah, for you, and for your whole (extended) family, including the teachers and community members who helped make this possible. And thanks for giving us this wonderful look into your lives. Too long? Hardly. It could have been much, much longer and I would have read with delight.

    • Yes, you are right on the money with what isn’t included here, like back when we lived in town and someone called Social Services on me. He had learned to run and would slip out the storm day any time it didn’t latch tightly and run down the driveway giggling with glee while one of us chased him. To him, it was great fun. To us, it was fun to chase him because it was a miracle that he could run!! But some well meaning person (or person with no life) misinterpreted this as “playing in the street”. Well, in an older, established neighborhood with wide streets offering no sidewalks, children on every street rode bikes, skateboards, and roller skates in the street, but J was never, ever allowed to play in the street. I’ll just say this–the things that followed between Social Services and this dedicated mom weren’t very pretty.

      Of course, I’m sure you were talking more about day to day frustrations, anxieties, etc. But I had the older three children with which to share the care giving. I think our biggest struggle was getting him potty trained all the way and convincing him that the indoor slide at McDonald’s was NOT the place to do Number 2. Let’s just say he cleared out the joint more than once!!!!!

      Oh, it is such a wonder that we’re able to move through it and taste the joys. Thank you for reminding me that there are yet new successes and delights ahead. I think that’s what was weighing so heavily on my heart the week before he was to finalize his application for TARC, where he would basically have been a little robot. I just kept feeling like he was going to rot if I put him there. Cooking class will be a challenge, and I pray he is up to it. If not, we will go back to the drawing board to see what else might work for this outstanding young man.j

      Now, get your fanny in gear and head this way!

  22. What an inspiring story about an exeptional young man and his loving family that wouldn’t take ‘No’ for an answer, when presented with nay-sayers or obstacles.

    Congratulations to Miah on his graduation and I wish him the best of luck in his future endeavors.

    P.S. What a sharp dressed man he was in his tux!

    • Gue`, he certainly was a sharp-dressed fellow in that tux. It was so funny when we left the dance, because he was wearing rented dress shoes, which he NEVER wears. He was limping so badly, but the pain didn’t take away from his joy whatsoever. He’s just such an amazing young man, and I’ve often wondered through the years why society feels sorry for these children. I think they have it way better than the rest of us, and we’re just too dumb to see it.

  23. How awesome for Miah! God truly knows the desires of Miah’s heart. I wish for him much joy and many blessings as he goes through life. I know you are one proud mama!

    • It’s so great to hear from you! I wondered if I lost you or you’ve just been lurking and not commenting! Yes, I am so proud, but more than that I’m just in awe of our God has worked all this out. It is just an example of God’s pure love toward such a pure soul. Don’t be a stranger, Mamabug!!!

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